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SCQM-News

26.03.2024: mySCQM receives General Terms and Conditions (GTC)

Before the next time you fill out the questionnaire for the visit or the short surveys, you will be shown the GTCs once for confirmation. In the event of a new version or changes, you will be informed again via mySCQM. You can find the GTCs in mySCQM at any time.

26.03.2024: New regulation regarding biosimilars

Measures to promote generics and biosimilars came into force on January 1, 2024. The Swiss Rheumatism League explains the changes that you should know about as a patient. Pharmacists are now allowed to replace an original biological medicine prescribed by a doctor with an available, cheaper biosimilar. Important: If this is the case for you and the medication in mySCQM is no longer up to date, please inform your doctor. Alternatively, you can also contact the SCQM office so that your medication can be entered correctly in the SCQM database again. In this way, you will help to maintain the integrity of the SCQM data - thank you very much for your valuable contribution!

29.02.2024: Webinar registration for medical professionals

Would you like a customised and free training for you and your team? You can easily book a customised training course using our contact form. Alternatively, we organise regular webinars, which you can register for here (DE | FR).

Next dates for webinars 
13/05/2024 | 12:00-13:00 | FR   
23/05/2024 | 17:00-18:00 | DE 
10/06/2024 | 12:00-13:00 | FR 
13/06/2024 | 17:00-18:00 | DE 
08/07/2024 | 17:00-18:00 | DE 
11/07/2024  | 12:00-13:00 | DE  
 
Contents

  • Presentation of the SCQM Foundation
  • Insight into the database and its benefits for healthcare professionals and patients
  • Q&A session 
     

We look forward to welcoming you or your team to the webinar.

14.12.2023: Results of the methotrexate survey from July 2022

In the July 2022 newsletter, we shared a survey about their experiences with methotrexate with those affected who are included in the SCQM register.

Kristina Bürki, nursing expert in rheumatology at the University Hospital Zurich, who is involved in the international project, provides us with a lay summary of the results of the survey here.

To the lay summary (DE / FR / IT)

14.12.2023: Video recording of the SCQM webinar on healthcare staff

Our lunch webinar took place on 9 November 2023. This was recorded and is now available on our website.

Content:

  • Pregnancy register RePreg (Prof. Dr Frauke Förger, Inselspital Bern)  
  • Benefits of the SCQM patient registry for those affected (Heidi Voser, participant in the SCQM patient registry)  
  • SCQM-DETECTRA study - rheumatology goes digital!  
    (Prof. Dr Thomas Hügle, Centre hospitalier universitaire vaudois, CHUV)  
  • Milestones and visions of the SCQM (Judith Safford, SCQM Executive Board)

To the video recording (only in German)

23.08.2023: The practical benefits of the SCQM patient registry for affected persons

On the occasion of the Swiss Axial Spondyloarthritis Meeting 2023, Dr Judith Safford, Executive Director of the SCQM Fondation and member of the Swiss Axial Spondyloarthritis Association, gave a video presentation. She spoke about the importance and benefits of the patient registry and about current challenges in the health care system.

You can find the whole presentation on bechterew.ch

19.04.2023: The new brochure for patients

Just in time for the go live of the new website, the new brochure for patients is available (in German, in French, in Italian). It is intended to provide patients with a basis for deciding to make their data available to research and thus make an important contribution to research and quality management.

We hope you enjoy reading it.

31.03.2023: New institutions

We are pleased to welcome four more institutions to the SCQM Registry:

Studio medico Lucini, Bellinzona
Cabinet Vidymed, Epalinges
MEDIN, Biel
Spital Emmental, Burgdorf