26.03.2024: mySCQM receives General Terms and Conditions (GTC)
Before the next time you fill out the questionnaire for the visit or the short surveys, you will be shown the GTCs once for confirmation. In the event of a new version or changes, you will be informed again via mySCQM. You can find the GTCs in mySCQM at any time.
26.03.2024: New regulation regarding biosimilars
Measures to promote generics and biosimilars came into force on January 1, 2024. The Swiss Rheumatism League explains the changes that you should know about as a patient. Pharmacists are now allowed to replace an original biological medicine prescribed by a doctor with an available, cheaper biosimilar. Important: If this is the case for you and the medication in mySCQM is no longer up to date, please inform your doctor. Alternatively, you can also contact the SCQM office so that your medication can be entered correctly in the SCQM database again. In this way, you will help to maintain the integrity of the SCQM data - thank you very much for your valuable contribution!
14.12.2023: Results of the methotrexate survey from July 2022
In the July 2022 newsletter, we shared a survey about their experiences with methotrexate with those affected who are included in the SCQM register.
Kristina Bürki, nursing expert in rheumatology at the University Hospital Zurich, who is involved in the international project, provides us with a lay summary of the results of the survey here.
23.08.2023: The practical benefits of the SCQM patient registry for affected persons
On the occasion of the Swiss Axial Spondyloarthritis Meeting 2023, Dr Judith Safford, Executive Director of the SCQM Fondation and member of the Swiss Axial Spondyloarthritis Association, gave a video presentation. She spoke about the importance and benefits of the patient registry and about current challenges in the health care system.
You can find the whole presentation on bechterew.ch
19.04.2023: The new brochure for patients
Just in time for the go live of the new website, the new brochure for patients is available (in German, in French, in Italian). It is intended to provide patients with a basis for deciding to make their data available to research and thus make an important contribution to research and quality management.
We hope you enjoy reading it.