Before the next time you fill out the questionnaire for the visit or the short surveys, you will be shown the GTCs once for confirmation. In the event of a new version or changes, you will be informed again via mySCQM. You can find the GTCs in mySCQM at any time.
Measures to promote generics and biosimilars came into force on January 1, 2024. The Swiss Rheumatism League explains the changes that you should know about as a patient. Pharmacists are now allowed to replace an original biological medicine prescribed by a doctor with an available, cheaper biosimilar. Important: If this is the case for you and the medication in mySCQM is no longer up to date, please inform your doctor. Alternatively, you can also contact the SCQM office so that your medication can be entered correctly in the SCQM database again. In this way, you will help to maintain the integrity of the SCQM data - thank you very much for your valuable contribution!
Would you like a customised and free training for you and your team? You can easily book a customised training course using our contact form. Alternatively, we organise regular webinars, which you can register for here (DE | FR).
Next dates for webinars
13/05/2024 | 12:00-13:00 | FR
23/05/2024 | 17:00-18:00 | DE
10/06/2024 | 12:00-13:00 | FR
13/06/2024 | 17:00-18:00 | DE
08/07/2024 | 17:00-18:00 | DE
11/07/2024 | 12:00-13:00 | DE
Contents
We look forward to welcoming you or your team to the webinar.
In the July 2022 newsletter, we shared a survey about their experiences with methotrexate with those affected who are included in the SCQM register.
Kristina Bürki, nursing expert in rheumatology at the University Hospital Zurich, who is involved in the international project, provides us with a lay summary of the results of the survey here.
Our lunch webinar took place on 9 November 2023. This was recorded and is now available on our website.
Content:
To the video recording (only in German)
On the occasion of the Swiss Axial Spondyloarthritis Meeting 2023, Dr Judith Safford, Executive Director of the SCQM Fondation and member of the Swiss Axial Spondyloarthritis Association, gave a video presentation. She spoke about the importance and benefits of the patient registry and about current challenges in the health care system.
You can find the whole presentation on bechterew.ch
Start of the new SCQM-DETECTRA study. Through photos of the hands, finger folds can be measured and compared with joint swellings.
Have we sparked your interest?
Read more here:
Information for patients (in German, in French, in Italian)
Information for healthcare professionals (in German, in French, in Italian)
For questions and further information please contact Cinja Koller (cinja.koller_at_unil.ch)
The Maelstrom metadata catalogue contains record descriptions from 378 global studies, facilitating collaboration in epidemiological research.
As part of the Swiss Personalised Health Network (SPHN) Cohort Consortium, the metadata of the SCQM cohorts (RA, axSpA, PsA, GCA, PMR and pregnancy) are now part of the Maelstrom metadata catalogue. On Maelstrom, researchers can search for data sources for their research projects. Presenting SCQM data on Maelstrom will increase the visibility of the SCQM nationally and internationally and hopefully lead to even more landmark research projects.
What can you do on Maelstrom?
If you want to know more about the data collected in the SCQM yourself, the Maelstrom catalogue can also be an interesting resource for Swiss researchers.
Just in time for the go live of the new website, the new brochure for patients is available (in German, in French, in Italian). It is intended to provide patients with a basis for deciding to make their data available to research and thus make an important contribution to research and quality management.
We hope you enjoy reading it.
We are pleased to welcome four more institutions to the SCQM Registry:
Studio medico Lucini, Bellinzona
Cabinet Vidymed, Epalinges
MEDIN, Biel
Spital Emmental, Burgdorf