| Variable | Level | Overall | RA | axSpA | PsA | GCA/PMR |
|---|---|---|---|---|---|---|
| N of patients | 20842 | 10959 | 5875 | 3425 | 583 | |
| Collection start | 1997 | 2005 | 2006 | 2020 | ||
| Year of inclusion (median [IQR]) | 2012 [2007, 2018] | 2010 [2004, 2015] | 2014 [2009, 2019] | 2015 [2010, 2020] | 2022 [2021, 2023] | |
| Clinical FU status (%) | Visit in 2025 | 4369 (21.0) | 1607 (14.7) | 1469 (25.0) | 1058 (30.9) | 235 (40.3) |
| Visit in 2024 | 1699 (8.2) | 694 (6.3) | 528 (9.0) | 367 (10.7) | 110 (18.9) | |
| Officially discontinued | 7844 (37.6) | 5151 (47.0) | 1802 (30.7) | 864 (25.2) | 27 (4.6) | |
| Inactive for at least 2 years | 6930 (33.3) | 3507 (32.0) | 2076 (35.3) | 1136 (33.2) | 211 (36.2) | |
| Year of last visit (median [IQR]) | 2019 [2013, 2024] | 2016 [2010, 2023] | 2020 [2015, 2024.50] | 2022 [2017, 2025] | 2024 [2022, 2025] | |
| Years of clinical FU (median [IQR]) | 3.75 [1.00, 8.41] | 4.28 [1.16, 9.15] | 3.30 [0.84, 7.95] | 3.72 [1.01, 7.99] | 1.03 [0.00, 2.50] | |
| Visits per patient (mean (SD)) | 6.46 (6.14) | 7.19 (6.83) | 5.62 (5.15) | 6.02 (5.37) | 3.59 (3.27) | |
| mySCQM entries per patient (mean (SD)) | 6.15 (17.84) | 4.40 (15.10) | 8.39 (20.46) | 8.57 (21.01) | 2.25 (11.04) | |
| Institution of inclusion visit (%) | hospital | 5000 (24.0) | 2682 (24.5) | 1473 (25.1) | 717 (20.9) | 128 (22.0) |
| private practice | 10972 (52.6) | 5922 (54.0) | 3045 (51.8) | 1923 (56.1) | 82 (14.1) | |
| university hospital | 4870 (23.4) | 2355 (21.5) | 1357 (23.1) | 785 (22.9) | 373 (64.0) | |
| Switched institution (%) | All visits at inclusion site | 18503 (88.8) | 9669 (88.2) | 5166 (87.9) | 3090 (90.2) | 578 (99.1) |
| Visits in multiple institutions | 2339 (11.2) | 1290 (11.8) | 709 (12.1) | 335 (9.8) | 5 (0.9) |
1 Introduction
This report provides an overview on the data and information collected in the past year (2025) for the different inflammatory rheumatic disease cohorts, see Figure 1, and special data collection initiatives like the unclassified arthritis cohort or the biobank project. Retroactive data entry is possible and all information within this report reflects the status within the SCQM as of the 2026-01-01.
Where not otherwise specified we report data or information on the SCQM patient populations at the end of 2025. The reporting considers any patient with at least one visit containing a minimum of physician based information. This report also excludes patients whose written informed consent has not been provided or not yet been verified.
There are three types of visits - inclusion, annual control and intermediate control visits. Each visit type includes physician and patient questionnaires. Furthermore the SCQM collects patient self-monitoring data via mySCQM independent of visits. An external link to summarized data collection schemes for each of the main cohorts is provided within Section 6.3.
As of the end of 2025 the main SCQM research cohorts encompass 20842 patients that have contributed their data for research. Table 1 provides further information about this cumulative population.
2 Core Data
Key Numbers
In 2025 the SCQM recorded 5430 visits from 4369 patients. Among these 606 patients were new inclusions. Furthermore, 17640 mySCQM entries were made by 2555 patients. Among these 258 were new mySCQM users. Visits were recorded by 244 doctors spread across 85 institutions in 17 different cantons.
See more in about Visits in Table 2, about Inclusions in Table 3 and about mySCQM in Table 4.
| Variable | Level | Overall | RA | axSpA | PsA | GCA/PMR |
|---|---|---|---|---|---|---|
| N of visits | 5430 | 2043 | 1781 | 1332 | 274 | |
| Visit-related patient questionnaire (%) | Included | 4747 (87.4) | 1768 (86.5) | 1608 (90.3) | 1189 (89.3) | 182 (66.4) |
| Not included | 683 (12.6) | 275 (13.5) | 173 (9.7) | 143 (10.7) | 92 (33.6) | |
| Visit number within patient (%) | Inclusion | 606 (11.2) | 199 (9.7) | 192 (10.8) | 138 (10.4) | 77 (28.1) |
| 2nd visit | 418 (7.7) | 137 (6.7) | 139 (7.8) | 112 (8.4) | 30 (10.9) | |
| 3rd, 4th or 5th | 1193 (22.0) | 358 (17.5) | 373 (20.9) | 331 (24.8) | 131 (47.8) | |
| 6th, 7th or 8th | 822 (15.1) | 291 (14.2) | 276 (15.5) | 226 (17.0) | 29 (10.6) | |
| 9th visit or higher | 2391 (44.0) | 1058 (51.8) | 801 (45.0) | 525 (39.4) | 7 (2.6) | |
| Years since symptom onset (median [IQR]) | 14.26 [7.23, 22.65] | 14.45 [7.27, 21.98] | 16.02 [9.76, 24.95] | 13.62 [7.35, 22.21] | 2.74 [1.18, 4.66] | |
| Years since diagnosis (median [IQR]) | 10.69 [5.04, 17.76] | 12.36 [6.24, 19.79] | 11.00 [5.66, 17.13] | 10.11 [4.78, 17.29] | 2.43 [0.98, 4.44] | |
| Type of institution (%) | hospital | 1072 (19.7) | 409 (20.0) | 361 (20.3) | 233 (17.5) | 69 (25.2) |
| private practice | 2659 (49.0) | 952 (46.6) | 927 (52.0) | 717 (53.8) | 63 (23.0) | |
| university hospital | 1699 (31.3) | 682 (33.4) | 493 (27.7) | 382 (28.7) | 142 (51.8) | |
| Per patient | ||||||
| N patients with visits | 4369 | 1607 | 1469 | 1058 | 235 | |
| N of visits per patient (mean (SD)) | 1.24 (0.64) | 1.27 (0.69) | 1.21 (0.60) | 1.26 (0.65) | 1.17 (0.48) | |
| Year of inclusion (median [IQR]) | 2019 [2013, 2023] | 2018 [2012, 2022] | 2019 [2013, 2023] | 2020 [2014, 2023] | 2023 [2022, 2025] | |
*dates of birth are only available in the format Year-Month. Ages were calculated while under the assumption everyone was born on the 15th of the month.
| Variable | Level | Overall | RA | axSpA | PsA | GCA/PMR |
|---|---|---|---|---|---|---|
| N of patients | 606 | 199 | 192 | 138 | 77 | |
| Age* at inclusion (median [IQR]) | 56 [42, 67] | 62 [53, 71] | 42 [32, 53] | 54.50 [39.25, 63] | 72 [67, 77] | |
| Years since symptom onset (median [IQR]) | 5.47 [1.53, 11.84] | 4.23 [1.29, 11.30] | 9.07 [4.06, 15.64] | 6.32 [2.72, 11.57] | 0.72 [0.24, 2.05] | |
| Years since diagnosis (median [IQR]) | 2.39 [0.54, 7.20] | 3.30 [0.72, 8.50] | 3.89 [1.11, 9.29] | 2.69 [0.86, 6.25] | 0.52 [0.13, 1.45] | |
| Type of institution (%) | hospital | 248 (40.9) | 87 (43.7) | 68 (35.4) | 59 (42.8) | 34 (44.2) |
| private practice | 160 (26.4) | 42 (21.1) | 62 (32.3) | 45 (32.6) | 11 (14.3) | |
| university hospital | 198 (32.7) | 70 (35.2) | 62 (32.3) | 34 (24.6) | 32 (41.6) |
*refers to patients that used the app in 2025, but not in 2024.
**refers to the unbroken string of years with at least one entry by that patient.
| Variable | Level | Overall | RA | axSpA | PsA | GCA/PMR |
|---|---|---|---|---|---|---|
| N of entries | 17640 | 6164 | 6708 | 4305 | 463 | |
| Entry number within patient (%) | 1st entry | 258 (1.5) | 84 (1.4) | 94 (1.4) | 60 (1.4) | 20 (4.3) |
| 2nd to 10th | 1722 (9.8) | 489 (7.9) | 698 (10.4) | 442 (10.3) | 93 (20.1) | |
| 11th to 40th | 5457 (30.9) | 1730 (28.1) | 2186 (32.6) | 1317 (30.6) | 224 (48.4) | |
| 41th to 100th | 9211 (52.2) | 3550 (57.6) | 3341 (49.8) | 2263 (52.6) | 57 (12.3) | |
| 101th entry or higher | 992 (5.6) | 311 (5.0) | 389 (5.8) | 223 (5.2) | 69 (14.9) | |
| Per patient | ||||||
| N patients with entries | 2555 | 902 | 1008 | 595 | 50 | |
| N of entries per patient (mean (SD)) | 6.90 (5.05) | 6.83 (4.53) | 6.65 (5.34) | 7.24 (4.81) | 9.26 (8.84) | |
| User history (%) | New user | 258 (10.1) | 84 (9.3) | 94 (9.3) | 60 (10.1) | 20 (40.0) |
| Ongoing user | 2174 (85.1) | 770 (85.4) | 863 (85.6) | 512 (86.1) | 29 (58.0) | |
| Returning* user | 123 (4.8) | 48 (5.3) | 51 (5.1) | 23 (3.9) | 1 (2.0) | |
| Years of continued** usage (median [IQR]) | 5.00 [3.00, 5.00] | 5.00 [3.00, 5.00] | 5.00 [2.00, 6.00] | 5.00 [3.00, 5.00] | 1.00 [0.00, 2.75] | |
| Year of last visit (median [IQR]) | 2025 [2023, 2025] | 2025 [2023, 2025] | 2025 [2023, 2025] | 2025 [2023, 2025] | 2025 [2024, 2025] | |
Contributing Institutions
The SCQM registry relies on the tireless work made by our many contributing institutions. Within Table 5, Table 6 and Table 7 we showcase those hospitals and practices that contributed the most towards the mission of the SCQM, both in 2025 and its entire existence, for visits, inclusions and new mySCQM users respectively. Note that these numbers include the special data collection for unclassified arthritis and not just the main research cohorts.
*example: “Cabinet Max Muster is 11th this year and was 13th last year, thus they get a +2 because they gained two places”.
**determined based on absolute numbers.
| Rank | Institution | Type of institution | Canton | Change from 2024* |
|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | |
| 2 | Inselspital Bern | UH | BE | |
| 3 | Centre hospitalier universitaire vaudois | UH | VD | |
| 4 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | |
| 5 | Rheuma Basel, Basel | PP | BS | +1 |
| 6 | Rheumazentrum Laufen, Laufen | PP | BL | -1 |
| 7 | rheumaliestal, Liestal | PP | BL | +4 |
| 8 | Ultraschall Zentrum Rheumatologie, Basel | PP | BS | +4 |
| 9 | Praxis Dr. med. Renate Mathieu, Solothurn | PP | SO | -2 |
| 10 | Aerztegemeinschaft 115, Wettingen | PP | AG | +3 |
| 11 | Spital Emmental Rheumatologie, Burgdorf | H | BE | +53 |
| 12 | Klinik St. Anna, Luzern | H | LU | -4 |
| 13 | Hôpitaux universitaires de Genève | UH | GE | -3 |
| 14 | OsteoRheumaBern, Bern | PP | BE | +8 |
| 15 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | -6 |
| 16 | Universitätsspital Basel | UH | BS | -2 |
| 17 | rheuma-bern ag, Bern | PP | BE | -1 |
| Rank | Institution | Type of institution | Canton | Best year** | Change from 2024* |
|---|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | 2025 | |
| 2 | Inselspital Bern | UH | BE | 2018 | |
| 3 | Hôpitaux universitaires de Genève | UH | GE | 2017 | |
| 4 | Centre hospitalier universitaire vaudois | UH | VD | 2024 | |
| 5 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | 2023 | +1 |
| 6 | Rheuma Basel, Basel | PP | BS | 2023 | -1 |
| 7 | Klinik St. Anna, Luzern | H | LU | 2019 | +1 |
| 8 | Bethesda-Spital, Basel | H | BS | 2016 | -1 |
| 9 | Kantonsspital Aarau | H | AG | 2017 | |
| 10 | Universitätsspital Basel | UH | BS | 2021 | |
| 11 | OsteoRheumaBern, Bern | PP | BE | 2017 | |
| 12 | Praxis Dr. med. Alexander Martin, Liestal | PP | BL | 2012 | |
| 13 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | 2017 | +1 |
| 14 | Luzerner Kantonsspital, Luzern | H | LU | 2012 | -1 |
| 15 | Kantonsspital Winterthur, Winterthur | H | ZH | 2014 | |
| 16 | rheumaliestal, Liestal | PP | BL | 2025 | +2 |
| 17 | Praxis Dr. med. Renate Mathieu, Solothurn | PP | SO | 2023 | +2 |
| 18 | Medizinisches Zentrum Brugg, Brugg | PP | AG | 2016 | -2 |
| 19 | Berner Rheumazentrum am Viktoriaplatz | PP | BE | 2018 | -2 |
| 20 | rheuma-bern ag, Bern | PP | BE | 2021 | +2 |
*example: “Cabinet Max Muster is 11th this year and was 13th last year, thus they get a +2 because they gained two places”.
**determined based on absolute numbers.
| Rank | Institution | Type of institution | Canton | Change from 2024* |
|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | |
| 2 | Spital Emmental Rheumatologie, Burgdorf | H | BE | +44 |
| 3 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | +6 |
| 4 | Centre hospitalier universitaire vaudois | UH | VD | +2 |
| 5 | Ultraschall Zentrum Rheumatologie, Basel | PP | BS | +3 |
| 6 | Kantonsspital Aarau | H | AG | +7 |
| 7 | Universitätsspital Basel | UH | BS | -5 |
| 8 | Inselspital Bern | UH | BE | -5 |
| 9 | rheumaliestal, Liestal | PP | BL | +3 |
| 10 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | -6 |
| 11 | Hôpitaux universitaires de Genève | UH | GE | -4 |
| 12 | Praxis Dr. med. Renate Mathieu, Solothurn | PP | SO | -7 |
| 13 | Rheuma Basel, Basel | PP | BS | -3 |
| 14 | Hirslanden Klinik Birshof, Münchenstein | H | BL | +15 |
| 15 | Rheumazentrum Laufen, Laufen | PP | BL | +12 |
| Rank | Institution | Type of Institution | Canton | Best year** | Change from 2024* |
|---|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | 2024 | |
| 2 | Inselspital Bern | UH | BE | 2014 | |
| 3 | Centre hospitalier universitaire vaudois | UH | VD | 2011 | |
| 4 | Hôpitaux universitaires de Genève | UH | GE | 2017 | |
| 5 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | 2012 | |
| 6 | Universitätsspital Basel | UH | BS | 2016 | |
| 7 | Rheuma Basel, Basel | PP | BS | 2009 | |
| 8 | Kantonsspital Aarau | H | AG | 2016 | |
| 9 | Klinik St. Anna, Luzern | H | LU | 2013 | |
| 10 | Universitätsklinik Balgrist, Zürich | H | ZH | 2008 | |
| 11 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | 2015 | +2 |
| 12 | OsteoRheumaBern, Bern | PP | BE | 2016 | |
| 13 | Bethesda-Spital, Basel | H | BS | 2011 | -2 |
| 14 | Kantonsspital Winterthur, Winterthur | H | ZH | 2013 | |
| 15 | Luzerner Kantonsspital, Luzern | H | LU | 2011 | |
| 16 | Praxis Dr. med. Renate Mathieu, Solothurn | PP | SO | 2023 | +1 |
| 17 | Berner Rheumazentrum am Viktoriaplatz | PP | BE | 2018 | -1 |
| 18 | rheumaliestal, Liestal | PP | BL | 2017 | +2 |
| 19 | Bürgerspital Solothurn, Solothurn | H | SO | 2010 | -1 |
| 20 | Klinik Impuls, Wetzikon | PP | ZH | 2005 | -1 |
*example: “Cabinet Max Muster is 11th this year and was 13th last year, thus they get a +2 because they gained two places”.
**determined based on absolute numbers.
| Rank | Institution | Type of institution | Canton | Change from 2024* |
|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | |
| 2 | Spital Emmental Rheumatologie, Burgdorf | H | BE | None |
| 3 | Centre hospitalier universitaire vaudois | UH | VD | +3 |
| 4 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | -2 |
| 5 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | +8 |
| 6 | rheumaliestal, Liestal | PP | BL | +11 |
| 7 | Rheuma Basel, Basel | PP | BS | -2 |
| 8 | Inselspital Bern | UH | BE | +2 |
| 9 | Universitätsspital Basel | UH | BS | +29 |
| 10 | Klinik St. Anna, Luzern | H | LU | -3 |
| 11 | Rheumapraxis am Park | PP | BS | +5 |
| 12 | Hôpitaux universitaires de Genève | UH | GE | -8 |
| 13 | Kantonsspital Baden, Standort Brugg | H | AG | -4 |
| Rank | Institution | Type of Institution | Canton | Best year** | Change from 2024* |
|---|---|---|---|---|---|
| 1 | Universitätsspital Zürich | UH | ZH | 2020 | |
| 2 | Inselspital Bern | UH | BE | 2020 | |
| 3 | Hôpitaux universitaires de Genève | UH | GE | 2020 | |
| 4 | Rheuma Basel, Basel | PP | BS | 2020 | |
| 5 | Klinik St. Anna, Luzern | H | LU | 2020 | |
| 6 | Centre hospitalier universitaire vaudois | UH | VD | 2020 | |
| 7 | HOCH Health Ostschweiz, Kantonsspital St.Gallen | H | SG | 2020 | |
| 8 | rheumaliestal, Liestal | PP | BL | 2020 | |
| 9 | Réseau Hospitalier Neuchâtelois de la Chaux de Fonds | H | NE | 2020 | +1 |
| 10 | Rheumatologie im Zürcher Oberland, Uster | PP | ZH | 2020 | -1 |
| 11 | OsteoRheumaBern, Bern | PP | BE | 2020 | |
| 12 | Universitätsspital Basel | UH | BS | 2020 | +1 |
| 13 | Klinik Impuls, Wetzikon | PP | ZH | 2020 | -1 |
| 14 | Rheumapraxis am Park | PP | BS | 2020 | |
| 15 | Universitätsklinik Balgrist, Zürich | H | ZH | 2020 | |
| 16 | Kantonsspital Baden, Standort Brugg | H | AG | 2020 | +1 |
| 17 | Ultraschall Zentrum Rheumatologie, Basel | PP | BS | 2020 | -1 |
| 18 | Praxis Dr. med. Alexander Martin, Liestal | PP | BL | 2019 | |
| 19 | Studio Medico Badaracco Cattaneo, Lugano | PP | TI | 2017 | |
| 20 | Praxis Widrig-Bernhardt, St. Gallen | PP | SG | 2020 |
3 Maps of the SCQM
The SCQM is active across all of Switzerland thanks to its many participating institutions. Figure 2 provides a geographical look at this collection effort. Additionally, Figure 4 provides some descriptions of which kind of patient had a visit in 2025 split by canton and Figure 3 provides a look at the entire research cohort as of the snapshot of this report with each patient assigned to the location of their initial inclusion into the registry.
